Rare Disease Project

Rare Disease Patients are one of the most neglected demographics in Hong Kong. Not only do they face issues such as incorrect diagnosis by physicians, lack of subsidy for medication and treatment, lack of clear policy by government of HK, their inspiring yet tear-jerking life stories are often obscured from public view. 

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Through this Rare Disease Project, we have enabled medical students to interview the life stories of rare disease patients in HK and share these stories to the public. We hope to be able to shine a light on the hidden plights of rare disease patients, and at the same time build up the empathy and communication skills of medical students, enabling them to become better doctors in the future.